Our crazy, but fun, ridiculously loud, big family including me and my husband, our 7 (almost 8) kids, 2 dogs, 1 cat, oh and the adventure with our son and his feeding tube.
Zombie Orchestra Concert
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Kenzie had her first orchestra concert of the year. It was so fun to watch them play and see how much they have progressed! They dressed up for Halloween. Kenzie dressed up as a zombie!
Monday, January 25, 2021- The weight of my blankets only made me want to stay in bed longer. I'm not a morning person regardless of not wanting to face Myles' doctor appointment. Myles decided he wanted to wear his super Mario brother hat from Halloween. Sure, why not?! When we arrived at the waiting room for the clinics in Primary Children's Hospital, I was taken back by the emptiness. The hospital, dedicated to the care of children, always has plenty to do and multiple options in the waiting room. We were once there for a swallow study and someone had the sole job to blow bubbles and play games to distract Myles and keep him happy during his testing. Anyways, thank you covid for destroying the fun for sick and sometimes scared kids waiting to be seen. 😓 We actually didn't have to wait long. The nurse took us back to the room they weigh and measure kids in. When I walked in memories flooded my mind of all the different times I've been in that room with Myl...
I woke up today already knowing that it would be an emotional day. Myles appointments with gastroenterology are always mentally taxing and my emotions run wild. WILD. I was so hopeful for good news today. Myles hasn't used his feeding tube in months. He's been on a 6 month oral only eating trial and it's done this month. I was hoping to hear the doctor be happy to tell me that we can now schedule to have Myles' tube out. The end of the feeding tube journey! We were hopeful halfway through this trial even though his weight gain hadn't been significant, but he had shown growth in height. The GI doc was happy with that growth then. But that was then. He did not meet the requirements the doctors need to have his tube removed. We have to go back to supplementing calories with tube feeds. Unfortunately, he has not grown at all in the last half of his trial. Weight or height. Nothing. The good news is, he is orally eating enough to maintain his weight and is ...
"Embrace the glorious mess that you are." This is a magnet on my fridge. I got this to remind myself to embrace my messy house, embrace my messy life, embrace my craziness and not be ashamed of who I am and who I'm striving to be. My house is frequently considered a disaster zone. I have struggled with balancing a clean house, being a good mom, and keeping my sanity for years. It really is a delicate balance. I have found that I can be a really good house keeper OR I can be a really good mom. I'm not to the point where I can claim both of these things at the same time. Maybe someday? The pile. Everything in 1 pile on 1 side of the room. I'm a bit OCD...you'd think that this would mean that I need things super clean. Here's my problem though. If something needs to be clean, then I'm going to clean that thing till it basically looks brand new, even if that means cleaning 1 thing for 8 hours. In the meantime everything else in the ho...
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