Me and Like A LOT of Kids

  Monday, January 25, 2021- The weight of my blankets only made me want to stay in bed longer. I'm not a morning person regardless of not wanting to face Myles' doctor appointment. Myles decided he wanted to wear his super Mario brother hat from Halloween. Sure, why not?! When we arrived at the waiting room for the clinics in Primary Children's Hospital, I was taken back by the emptiness. The hospital, dedicated to the care of children, always has plenty to do and multiple options in the waiting room. We were once there for a swallow study and someone had the sole job to blow bubbles and play games to distract Myles and keep him happy during his testing. Anyways, thank you covid for destroying the fun for sick and sometimes scared kids waiting to be seen. 😓   We actually didn't have to wait long. The nurse took us back to the room they weigh and measure kids in. When I walked in memories flooded my mind of all the different times I've been in that room with Myl

  Not a real mouse on his shoulder, but it is his buddy...        It’s that time again and I’m never ready for it. Time for Myles gastroenterology appointment. Time for my emotions to run wild and I’m sure I’ll go a bit crazy tomorrow. It’s been almost a year since we’ve seen the GI doc in person. Through covid we’ve had virtual appointments and I’ve seemed to handle those better than going in person.               What do I want to happen at tomorrow’s appointment? I wish that the doctor would look at tiny Myles and say, “Wow, you’re getting really tall and you’re getting pretty big! It’s probably time we take that button out now!” But in reality, he’ll probably take a look at Myles and his numbers and be happy that there is progress…but…not enough. Never enough. That’s what it seems at least. Don’t get me wrong, he’s a great doctor and great with Myles. But, it’s hard not to take these things personally as a mother.                A year ago, we did a 6 month oral eating only